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Presentation

BioéthiqueOnline is a peer-reviewed, bilingual (French and English), international, open access academic journal that publishes theoretical, conceptual and empirical research in bioethics. The journal is a collaborative endeavour between the Bioethics Program and the Bioethics Student Association (AÉBiUM) at the University of Montreal, and uses a completely online platform to bring together scholarly and professional resources to help foster the development of a robust, collaborative and bilingual bioethics community in Montreal and across Quebec, but also more generally in Canada and internationally. The aim of the journal is to provide a space for the publication of high quality and thought provoking bioethics scholarship of diverse forms (e.g., articles, commentaries, book reviews, editorials, debate pieces, case studies) and from across the full range of specialties in the field (e.g., clinical ethics, research ethics, public health ethics, technology ethics, professional ethics). The journal welcomes submissions that might not otherwise be publishable in US or European bioethics journals because of the language (e.g., in French), jurisdictional context (e.g., specific national issues or cases), form or subject matter (e.g., using diverse theoretical frameworks or applying novel methods).

Indexing

Review Process

Manuscripts submitted to BioéthiqueOnline will be evaluated (open, non-blinded) by two members of the Editorial Board (a section editor and another member of the Board), and if necessary, by the Executive Committee. Article submissions will also be peer-reviewed.

To ensure full transparency, the evaluating editors will be named on all publications. Manuscripts will be evaluated for originality, academic merit, pertinence and innovation, according to a standardized marking grid (which will be provided to authors). Manuscripts will then be accepted with minor or major revisions, or rejected if they do not meet the standards of BioéthiqueOnline. The editors will work with authors, to the extent that is reasonable, to help arrive at publications of the highest quality. The editors will respect requests from authors that a particular editor not review their submission, if these are well reasoned and practicable. When revisions are requested prior to final decision, revised papers must be received within 1 month.

Should an author be dissatisfied with an editorial decision, they may submit an appeal to the Executive Committee (contact@bioethiqueonline.ca), who will meet to review all pertinent documentation (manuscript, emails, evaluations, etc.) and render a final decision within 1 month.

Manuscript Preparation

Submission Process

As the name indicates, BioéthiqueOnline accepts papers written in either French or English. Papers are published free of charge and in the language of submission. The journal welcomes manuscripts of the following types:

  • Articles (approx. 3500-7000 words; peer-reviewed): original empirical, theoretical or conceptual research; review articles
  • Reviews (approx. 750-1200 words): books, conferences, events
  • Case studies (approx. 750-1200 words)
  • Commentaries (approx. 1000-2000 words): Critical perspectives on recent articles or events of interest to the bioethics community
  • Inspired by Bioethics: Artistic and Creative Works: Artistic and creative works of significance to bioethics (all mediums that can be presented online will be considered)
  • Letter to the Editor (approx. 250-500 words)
  • Other types of manuscript that do not fall into the above mentioned categories will be considered by the Executive Board (contact@bioethiqueonline.ca).

Authors should submit their manuscripts by email (as attachments) to the appropriate section editor. The section editor will then reply with a confirmation of receipt and an approximate timeline for primary consideration and editorial review.

Structure

Text should be submitted in Word (.doc or .docx) or Real Text Format (.rtf).

Title: Titles should be no more than three typeset lines (generally 135 characters including spaces) and should be comprehensible to a broad audience.

Author affiliation: Include department, institution and complete address, for each author. Use superscripts to match authors with institutions.

Corresponding author and guarantor: The name, complete address, and e-mail address of the author to whom correspondence and proofs should be sent.

Abstract: For articles, please provide a 250 word abstract. For all other submissions (e.g., commentaries, case studies, book reviews), please provide a 1-2 sentence summary. Abstracts should explain to the general reader the major contributions of the article. References are not necessary in the abstract.

Keywords: Please provide 5-8 keywords

Headings & Sub-headings: Use headings and subheadings (i.e., Introduction, major headings, Conclusion) where appropriate to structure your text.

Citations: Use Numbered reference style for in-text citations – e.g., [1]  – and place references at end of text in List of References. Do not use footnotes or endnotes for referencing.

References: Use a numbered List of References, in order of appearance in text, following the Vancouver system citation style. Give complete reference information, i.e., all author names and full journal name. Provide inclusive page ranges for journal articles and book chapters. Where possible, add static links to documents that are publicly accessible online. Cite databases in the text. Only published or in-press papers and books may be cited in the reference list. Unpublished abstracts of papers presented at meetings or references to “data not shown” are not permitted.

Footnotes: Use (numbered) footnotes sparingly, and only to provide clarifying information that does not fit in the main text.

Tables/Figures: Tables and Figures should be embedded in the body of the text, with a brief Title and legend.

Acknowledgments: List acknowledgments and all funding sources.

Conflicts of Interest: Disclose any association that poses a conflict of interest in connection with the manuscript. Authors must acknowledge all funding sources supporting the work. (Disclosure of Potential Conflicts of Interest)

Language-Editing Services

Prior to submission, authors who believe their manuscripts would benefit from professional editing are encouraged to use a language-editing service. The journal reserves the right to demand language correction of a manuscript, if necessary. Manuscripts not meeting academic standards of French or English will not be accepted for publication.

Digital Figures

File types with extensions JPG, PNG, TIFF, EPS, and high-resolution PDF will be permitted for inclusion in the online journal.

Movies: Supply Audio Video Interleave (avi), Quicktime (mov), Windows Media (wmv), Animated GIF (gif), or MPEG files and submit a brief legend for each movie in a Word or RTF file.

Still images: Authors must provide a still image from each video file. Supply TIFF, EPS, high-resolution PDF, JPEG, or GIF files.

Appendices: Authors should submit individual source files to ensure readability. If this is not possible, supply a single PDF file that contains all of the supporting information associated with the manuscript. This file type will be published in raw format and will not be edited or composed.

Page Setting Process

In order to comply with BioéthiqueOnline’s templates, once a paper has been accepted by the editor it will go through the following page setting process:

  • An editor (usually the one who did the first review) will incorporate the text in the corresponding template;
  • The file will be converted into a PDF file;
  • The editor will then publish a post containing the author list, affiliations, acknowledgements, conflicts of interests, the abstract, the full text, and a link to the PDF file.

The official publication is the PDF file, and can be referenced in the following manner:

Authors. BioéthiqueOnline year, volume/issue (http://bioethiqueonline.ca/vol/issue)

Editors’ Roles & Responsibilities

The Editor-in-Chief and the Associate Editors are the official representatives and spokespersons for the journal; they develop and promote the journal’s policies and procedures, and ensure the good governance, structure and the proper conduct of business. The Editors are responsible, where appropriate, for reviewing submitted manuscripts, performing editorial and expedited review, and publishing news or thematic content. All editors are ambassadors for the journal and, as such, engage in supporting and promoting the journal in local and international venues, and in soliciting and actively encouraging submissions.

Publication

Publishing Fees

BioéthiqueOnlineis an open access journal run by BioéthiqueOnline Inc, a non-profit organization dedicated to furthering the advancement of open discussion concerning bioethics. Authors will never be asked to pay any fees associated with the publication of their articles. Nonetheless, donations will be accepted (and receive an official tax credit for Canadians) to support the basic operating expenses of the journal.

Copyright

BioéthiqueOnline applies the Creative Commons Attribution 4.0 International License to all its publications. Authors therefore retain copyright of their publication, e.g., they can reuse their publication, link to it on their home page or institutional website, deposit a PDF in a public repository such as PubMed Central. However, the authors allow anyone to download, reuse, reprint, modify, distribute, and/or copy their publication, so long as the original authors and source are cited:

Authors. Year. BioéthiqueOnline, volume/issue (http://bioethiqueonline.ca/vol/issue).

No permission is required from the authors or the publishers.

Prior Publication

Manuscripts are considered provided they have not been previously published or are not concurrently under review elsewhere for publication. The Editorial Board will nonetheless consider propositions for the inclusion of previously published material (assuming permission from the copyright holder has been obtained) in thematic sections of the website. Figures or tables that have been published elsewhere must be identified, and permission of the copyright holder must be provided.

Errata

BioéthiqueOnline will publish corrections for errors, made by the journal or authors, of a scientific nature that do not alter the overall basic results or conclusions; a note to this effect, with a label CORRECTION, will be added to a revised PDF of the publication. Corrections or errors linked to non-scientific content such as minor typographic errors, the correspondence information, etc. will not be published as errata. BioéthiqueOnline will publish retractions for major errors that may call into question the source of the data or the validity of the results and conclusions of a publication. In the event that the validity of the entire paper is called into question, this may result in retraction and possible investigation. Errata are published at the discretion of the editors and appear as formal online notices in the journal.

Academic Integrity and Responsible Conduct of Research

The editors of BioéthiqueOnline follow the recommendations and procedures outlined in the COPE Code of Conduct and Best Practice Guidelines for Journal Editors. Specifically, the editors will work to ensure the highest ethical standards of publication, including: the identification and management of conflicts of interest (for editors and for authors), the fair evaluation of manuscripts, and the publication of manuscripts that meet the journal’s standards of excellence. All work should be free of fabrication, falsification, and plagiarism as defined by the Tri-Agency Framework: Responsible Conduct Of Research. Where editors detect possible misconduct with regards to a submission, they are ethically obliged to act, first by seeking a response from the corresponding author and if not satisfied, by following-up with the relevant employer or institution. Editors should make all reasonable efforts to ensure that a proper investigation into alleged misconduct is conducted.

Authorship

Authorship should be limited to those who have contributed substantially to the work. The corresponding author must have obtained permission from all authors for the submission of the manuscript and for any change in authorship. The corresponding author is the formal guarantorof the manuscript, and thus the individual identified as accountable for the integrity of the content, including data and results if applicable, reported in the paper. The corresponding author is responsible for replying to e-mails associated with the review of their manuscript. All authors share part of the responsibility for any manuscript they coauthor, and as such, must ensure (to the best of their knowledge) that the paper is an accurate, verifiable report of the research. While all coauthors may not be experts in all aspects of the research presented in their paper, they should have in place an appropriate process for reviewing the accuracy of the reported results.

Conflict of Interest

Authors

All authors and editors must disclose any association that poses a conflict of interest in connection with the manuscript. As described in the 2nd edition of Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans, A conflict of interest may arise when activities or situations place an individual or institution in a real, potential or perceived conflict between the duties or responsibilities related to research, and personal, institutional or other interests. In the context of publication, examples of possible or potential conflicts of interest include a close personal friendship or family relationship with members on the Editorial Board, certain funding sources, or particular ideological, political or religious beliefs. Many interests of this sort will be managed effectively through disclosure, either in the text (e.g., one’s personal political or religious perspective) on in a declaration of interests (e.g., a funder) at the top of the publication. Authors should disclose relevant conflicts of interest to the editor (by completing/submitting the Disclosure of Potential Conflicts of Interestform), and work to manage those conflicts that cannot be avoided.

Editors

Members of the Editorial Board – including the Editor-in-chief and the Executive – will publish in the journal. To mitigate as much as possible this real and apparent conflict of interest, editors will not be involved in the review of their own manuscripts, or those in the section for which they are responsible. The evaluators of editor authored manuscripts will follow the same principle as applied to non-editor authored manuscripts, namely, working to ensure that the final paper meets the highest standards of quality and academic excellence. To ensure full transparency, a note will be included at the top of any editor-authored paper stating that the author is also an editor at the journal, and enumerating any other conflicts of interest. Further, the names of the editors who evaluate a manuscript will always be named on the final publication, as is the case for all publications. The biographies of the editorial board will list all relevant interests (financial, academic, etc.) and will be regularly updated (at least annually).

Advertising and Commercial Interests

BioéthiqueOnline is a not-for-profit journal and run entirely on a volunteer basis; as such, editors are not remunerated for their journal related activities. The Editorial Board may on occasion decide to publicise certain events or activities on the journal website, but no paid advertising or sponsorship will be solicited or accepted.

Human Participants

Research involving human participants must have been approved by the author’s institutional research ethics board (REB/IRB). Authors must include in their Methods section a brief statement identifying the institutional and/or licensing committee approving the research. Authors must also include a statement confirming that informed consent was obtained from all human participants. Research must have been conducted according to the principles expressed in the Canadian Tri-Council Policy Statement: Ethical Conduct for Research Involving Humansor similar international policies on research ethics (e.g., Declaration of Helsinki).

Materials and Data Availability

To allow others to replicate and build on work published in BioéthiqueOnline, authors must make materials, data, and associated protocols available to readers. Authors must disclose upon submission of the manuscript any restrictions on the availability of materials or information. Data not shown and personal communications should be of limited use to support claims in the work. Certain data or information can be kept confidential for ethical reasons (such as identifying information of participants). Any other reasons for concealing data or material must be justified. Authors are encouraged to deposit as much of their data as possible in publicly accessible databases. As for material banks, researchers are strongly encouraged to share material after publication to promote sharing within the scientific community.

Privacy Policy

BioéthiqueOnline will retain personal author information (e.g., contact details), solely with the objective of fulfilling the journal’s mandate and ensuring an efficient and ethical publication process. Personal information will be protected by reasonable security safeguards against loss or theft, as well as unauthorized access, disclosure, copying, use or modification.

Institutional Subscriptions - Digital version

 

Érudit is not responsible for individual subscriptions management. Please contact the journal for an individual subscription.

Executive

Editor-in-Chief

Bryn Williams-Jones, PhDis Professor and Director in the Bioethics Program, Department of Social and Preventive Medicine, School of Public Health (ESPUM) at the University of Montreal. An interdisciplinary scholar trained in Bioethics, Bryn is interested in the socio-ethical and policy implications of health innovations in diverse contexts. His research also examines the conflicts that arise in academic research and professional practice with a view to developing ethical tools to manage these conflicts when they cannot be avoided. Bryn heads the Research Ethics and Integrity GroupCompeting interests: Bryn currently supervises (or has supervised in the past) members of the editorial board and other authors who publish in the journal; he is never involved in evaluating or making decisions regarding the acceptance of their manuscripts.


Executive Editors

Renaud BoulangerRenaud F. Boulanger, BA, is an MSc candidate at McGill University and a Research Award Recipient at the International Development Research Centre, where he works with the Advisory Committee on Research Ethics and conducts empirical research on research ethics in the developing world. Prior to this, Renaud conducted research on community engagement as part of advisory services offered to the Bill & Melinda Gates Foundation by the McLaughlin-Rotman Centre for Global Health. This line of work brought him to Mexico, where he documented the challenges and successes of a research consortium tackling tuberculosis. Following a request from the Critical Path to TB Drug Regimens initiative, he also got involved in the adaptation of the Good Participatory Practice guidelines to the context of tuberculosis research. The adaptation is currently the subject of a study funded by the National Institutes of Health. Renaud’ long-time interest in academic publication took him to London after he finished his undergraduate studies at the University of Toronto for an internship with The Lancet. Some of his other experiences in bioethics include a year-long practicum at the Toronto Central Community Care Access Centre, as well as a paid internship offered by the Joint Centre for Bioethics. As part of this internship, Renaud conducted an evaluation of Trillium Health Centre’s pilot project on advance care planning. In the course of his Master’s, Renaud received funding from FRQS, the Fondation Desjardins and Acfas, the Centre de recherche en éthique, as well as McGill University. Competing interests: none declared.


vincentVincent Couture, MA, is a PhD student in the Clinical Sciences Program, Faculty of Medicine and Health Sciences, University of Sherbrooke. His research interests focus on cross-border reproductive care, gamete transaction and reprogenetics. He works for the transdisciplinary research programme on the social, ethical, medical and legal aspects of reprogenetics (Fonds de recherche du Québec–Santé, Health and Society Program) with Professors Chantal Bouffard, Régen Drouin and Jean-Marie Moutquin at the Division of Genetics of the Faculty of Medicine and Health Sciences, Université de Sherbrooke. He holds studentships from the Fonds québécois de la recherche sur la société et la culture and the Quebec Training Network in Perinatal Research. Competing interests: none to declare.


dupras

Charles Dupras, MSc. Charles Dupras has a masters in molecular biology, completed at the National Institute of Scientific Research (INRS). He is now a doctoral candidate in Bioethics at the School of Public Health at the University of Montreal (ESPUM), under the supervision of Prof. Vardit Ravitsky. His thesis focuses on the ethical, social and political issues relating to the translation of knowledge from molecular epigenetics. He is a recipient of the Canadian Institutes of Health Research (CIHR) F. Banting and C. Best scholarship, and the Jonathan Lomas scholarship supplement for knowledge translation (KT). Charles is co-organizer of IRSPUM Cafes Bioethique, scientific cafés also funded by the CIHR. He works as a research assistant on the ethical, legal and social issues of non-invasive prenatal testing (NIPT) and is part of the OMICS-ETHICS research group. He is a regular member of the Research Ethics Borad for Health Research at the University of Montreal (CERES), a member of the research group on conflicts of interest and a partner of the NeoHumanitas project. Competing interests: none declared.


Section Editors

Articles (articles@bioethiqueonline.ca)

 

VChenelVanessa Chenel, MA, PhD, is a post-doctoral fellow at the School of Rehabilitation, Faculty of Medicine, Université de Montréal. She works on the AT-SELECT projet (for Assistive Technology Self-Selection) called "Understanding the issues around adoption of e-decision support for self-selection of assistive technology by elders". She helps in consulting on the social, ethical and cultural issues surrounding the adoption of this e-decision support to the Canadian context. In 2015, she obtained a PhD in Clinical Sciences at the Faculty of Medicine and Health Sciences, Université de Sherbrooke. During her doctoral research project, she examined the influence of researchers' social and disciplinary culture on the perception of impacts and acceptability of various synthetic nanodevices used in medicine. Vanessa also obtained a bachelor’s degree in Pharmacology at the Faculty of Medicine of the Université de Sherbrooke in 2008 and a master’s degree in Philosophy-Applied Ethics at the Université de Sherbrooke. In March 2011, she completed a thesis analysing the principle of substantial equivalence as a guiding concept for safety assessment of GM products. She is also a member expert in ethics at the Health Research Ethics Board of the Clinical Research Center Étienne-Le Bel (CRCELB) of the University of Sherbrooke Hospital. Competing interests: none to declare


Case Studies (cases@bioethiqueonline.ca)

 

Marie-Eve LemoineMarie-Eve Lemoine, BSc, PT, MA. After completing a bachelor's degree in physiotherapy and working in a hospital context for two years, Marie-Eve moved on to the Bioethics Program at the University of Montreal to deepen certain ethical reflections relating to her practice. In contact with the students and faculty of this program, she quickly broadened her horizons and developed a strong interest in reproductive ethics. While continuing to work part-time in physiotherapy, she completed her MA thesis on the relevance of public health initiatives -- and the associated ethical issues -- to infertility and advanced maternal age. Marie-Eve then took a break following the birth of her daughter, and then in 2014 began her PhD in bioethics under the direction of Professor Vardit Ravitsky at the University of Montreal. Her doctoral project focuses on the ethical and social issues of non-invasive prenatal diagnosis (NIPT). In the context of the PEGASUS project, sponsored by Genome Canada, Génome Québec and CIHR, Marie-Eve's research seeks to develop and evaluate interactive information tools for patients, to promote informed choice in relation to NIPT. Her PhD project is funded by a scholarship from the FRQ-S (Quebec Health Research Fund) for health professionals. Competing interests: none declared.


Inspired by Bioethics: Artistic and Creative Works (bioethicsart@bioethiqueonline.ca)

 

vincentVincent Couture, MA, is a PhD student in the Clinical Sciences Program, Faculty of Medicine and Health Sciences, University of Sherbrooke. His research interests focus on cross-border reproductive care, gamete transaction and reprogenetics. He works for the transdisciplinary research programme on the social, ethical, medical and legal aspects of reprogenetics (Fonds de recherche du Québec–Santé, Health and Society Program) with Professors Chantal Bouffard, Régen Drouin and Jean-Marie Moutquin at the Division of Genetics of the Faculty of Medicine and Health Sciences, Université de Sherbrooke. He holds studentships from the Fonds québécois de la recherche sur la société et la culture and the Quebec Training Network in Perinatal Research. Competing interests: none to declare


Commentaries (commentaries@bioethiqueonline.ca)

 

Aliya AffdalAliya Affdal, MSc, PhD student, Bioethics Program, University of Montreal. Aliya has a Masters in Medical Ethics from the Faculty of Medicine, Université René Descartes in Paris and a Masters in Analysis and Management of Health Facilities, grouned by an internship at the National Council for Continuing Education of Hospital Doctors. Currently a PhD student in the biomedical sciences program, bioethics option, she is doing her thesis under the supervision of Dr. Vardit Ravitsky on ethical issues raised by fertility preservation in prepubessant girls in oncology. Alongside this research area, Aliya is also interested in doctor-patient relationship regarding issues of information, consent and the right of patients in the context of new human reproductive technologies. She also has an interest in ethical issues related to posthumous conception, germplasm banks, and pediatrics. Competing interests: none declared


Reviews (reviews@bioethiqueonline.ca)

 

Lise Levesque, PhDLise has a Ph.D. in molecular biology (2002) and she also did a post-doc in this discipline (2004). Her strong interest in socio-ethical aspects of science motivated her to complete an M.A. in bioethics (2007). She was active in the Bioethics Student Association as chair and in the Canadian Bioethics Society as chair of a committee. She has published articles in bioethics and taught bioethics to undergraduate students in the biological sciences. Lise has contributed to research projects pertaining to genomics, nutrigenomics, organisation of primary health care and to bioethics, and she is also interested in socio-ethical aspects of biotechnologies. From 2009 to 2014, she worked as a research associate at the Centre de santé et de services sociaux de Laval, then at Centre de recherche du Centre hospitalier de l’Université de Montréal. In 2014-2015, she was researcher and organizational transformation consultant at AXDEV Group Inc. She is now research associate at Centre de recherche-Hôpital Charles-Le Moyne (affiliated to Université de Sherbrooke). She collaborates to research projects on organization of cancer care. Competing interests: none to declare.


Multi-medium (media@bioethiqueonline.ca)

 

Charles Marsan, BSc, BA, DMV, MA. Charles has a Bachelors degree in Biology (Ecology) from the Université du Québec à Montréal (1983) and a Doctorate in Veterinary Medicine from the Université de Montréal (1988). He practised in his own vet clinic for 15 years in Quebec, in large and small animal medicine and surgery. Since 2005, Charles is interested in research on bullying. He did a Bachelors degree at Université de Montréal in Redaction, Jounalism and Multimedia. He completed a Master degree in Bioethics on the issues raised by Conflicts of Interest in companion animals veterinary practice. He is currently pursuing doctoral studies in biomedical sciences (Bioethics) on the concept of alteration of clinical reasoning in situations of conflicts of interest among health professionals. Charles is webmaster and member on the board of AQEC (association québécoise d’éthique clinique). Competing interests: Charles is supervised by Bryn Williams-Jones.

Editors

Cecile BensimonCécile Bensimon, PhD, is Director of Ethics at the Canadian Medical Association. Cécile earned her PhD from the Institute of Medical Science at the University of Toronto. She was previously at the University of Toronto Leslie Dan Faculty of Pharmacy and Faculty of Dentistry after returning from a visiting scholarship in humanitarian and disaster ethics at Tel Aviv University’s Sackler School of Medicine. During that time, she built on her expertise in public health ethics, in particular ethical issues raised during public health emergencies such as the use of restrictive measures in contexts of contagion and resource allocation in contexts of scarcity. Previously, she was a research scientist at Bridgepoint Health after completing a Post-Doctoral Fellowship at the University of Toronto Joint Centre for Bioethics Canadian Program of Research on Ethics in a Pandemic (CanPREP). At the height of the H1N1 pandemic, Cécile acted in an ethics advisory capacity to the Canadian Public Health Agency (PHAC) and Public Health Ontario (PHO) to guide vaccination prioritization plans. Prior to that, she was a Research Fellow with McGill University Faculty of Law Centre for Intellectual Property Policy where she was a member of the International Expert Group on Biotechnology, Innovation and Intellectual Property that sought to develop more effective intellectual property systems to bolster access to essential medicines. As part of her work in global health, she jointly authored the book, Bioindustry Ethics, on ethical decision-making and corporate social responsibility in the bioscience industry. Cécile began her career in diplomacy with the Canadian Foreign Service after having earned a Bachelor of Social Science in International Development and Globalization and a Masters in Political Philosophy from the University of Ottawa. Her recent publications, which have appeared in Social Science and Medicine, the Journal of Bioethical Inquiry, the American Journal of Bioethics, and the American Journal of Public Health, reflect the breadth of her research interests that include disaster ethics, public health ethics, mental health ethics, and dental ethics. Competing interests: none declared


stephen clarkeStephen Clarke, BA, is an MA candidate at McGill University in Philosophy, in association with the Biomedical Ethics Unit. His masters thesis examines the intersection of feminist care ethics and its implications for patient-centred care, particularly in contexts that involve vulnerable patient populations and other groups on the margins of healthcare.  He is currently contributing to research projects concerning the ethics of disaster research, community based rehabilitation, and telemedicine. Stephen's training is in philosophy, but his work has expanded to include interdisciplinary approaches to bioethics research. He is also interested in philosophy of science, with a focus on feminist epistemology, evidence-based medicine, and the negotiation of social values in scientific theory. Competing interests: none to declare


MarleenMarleen Eijkholt, LLM, PhD, is an assistant professor of Medical Humanities at Davidson College. Here she teaches clinical ethics, neuroethics, and health law, policy and ethics. Marleen also works as a clinical ethicist at Carolinas Medical Center. As such, she consults on the ethical issues that arise in the practice of medicine, such as surrogate decision-making, end-of-life decision-making, organ donation, issues around birth and pregnancy, anorexia and force-feeding and moral distress. In this role she further helps to develop hospital policies, quality improvement mechanisms and education opportunities for providers. Before arriving in Charlotte, Marleen did a clinical and a research fellowship training, respectively in Albany, up-state NY, and in Vancouver (Canada). She worked on many projects and published in peer-reviewed journals on stem cell interventions for spinal cord injury, imaging technologies, placebos, human rights and reproductive issues. Her background is in law and bioethics, with a particular focus on international comparative health law, human rights and legal theory. She has an LLB/LLM degree from the Maastricht University (NL), and a PhD in Bioethics and Medical Jurisprudence from the University of Manchester (UK), which focused on the right to procreate. Marleen held associate lecturer positions in diverse institutions and was awarded several prestigious grants, amongst which the "Talent for the Future" scholarship in Maastricht. She was at the Bioethics Committee of the Council of Europe in Strasbourg (FR) from January to April 2010. Marleen combines legal, theoretical, philosophical and clinical ethical approaches in her work; she is excited to combine both theory and clinical reality in her professional life as an educator, researcher, and consultant. Competing interests: none declared.


mona.guptaMona Gupta, MD, PhD, is a consultation-liaison psychiatrist and researcher at the CHUM in Montreal. She is also Assistant Professor in the Department of Psychiatry and in the Bioethics Program of the Department of Social and Preventive Medicine, at the University of Montreal. She received her medical degree from McGill University and completed her residency and fellowship training in psychiatry at the University of Toronto where she also did her PhD in bioethics. Her areas of academic interest are in bioethics and the philosophy of psychiatry. Mona is widely published on the subject of ethics and evidence-based medicine in psychiatry. Her research monograph on this topic will be published by Oxford University Press in 2014. Dr Gupta is actively engaged in the bioethics community. In addition to her role in BioéthiqueOnline, she is a member of the editorial committee of the Journal of Ethics and Mental Health, an executive member of the Association for the Advancement of Philosophy and Psychiatry, and a member of the RCPSC Bioethics Committee. Competing interests: none declared


HazarHazar Haidar, MSc, has a Masters in genetics and health and is currently a doctoral student in Bioethics at the University of Montreal. Her thesis project focuses on the ethical, social and legal issues raised by the introduction of Non-Invasive Prenatal Tests (NIPT) in two different cultural contexts: Lebanon and Quebec. Hazar is a research assistant for the project “PErsonalized Genomics for prenatal Aneuploidy Screening USing maternal blood” (PEGASUS) and works on various issues raised by the introduction of NIPT. This project has as an objective to provide information about the social and legal acceptability of NIPT that will be relevant for policy decisions on the inclusion of the test in the Canadian health care system. Competing interests: none declared


hadiHadi Karsoho, BA, Hadi Karsoho is a doctoral candidate in sociology and social studies of medicine at McGill University. His doctoral thesis is centered on Carter v. Canada, the ongoing landmark court case that is shaping up to be the most significant legal challenge to Canada's Criminal Code prohibitions on euthanasia and assisted suicide since Rodriguez v. British Columbia in 1993. By following the unfolding of the series of events and the diverse actors associated with the case, Hadi is able to investigate contemporary questions on death and dying that lie at the intersection of law, medicine, and ethics. Hadi considers himself an interdisciplinary scholar having received training in both quantitative and qualitative research methods and from multiple disciplines including but not limited to bioethics. Competing interests: none declared


Diane 2Diane Kunyk, RN, PhD, is an Assistant Professor in the Faculty of Nursing and Adjunct Professor in the John Dossetor Health Ethics Centre at the University of Alberta. She teaches interdisciplinary graduate courses in research and healthcare ethics. Diane has a particular interest in relational and organizational ethics as these inform health policy. Competing interests: none declared


Zubin MasterZubin Master, PhD, is an Assistant Professor at the Alden March Bioethics Institute, Albany Medical College. He holds a doctorate in cellular and molecular biology from the University of Toronto and has performed a post-doctoral fellowship in bioethics and health policy at Dalhousie University and the University of British Columbia. Previously, Zubin worked as a Senior Policy Advisor/Analyst at Health Canada. Initially he developed regulations on assisted human reproduction and embryo research under the Assisted Human Reproduction Act and subsequently led the development of the Health Canada Scientific Integrity Framework. Zubin’s area of research interests in bioethics focuses on the ethics and policy of embryo and stem cell research, genethics, the ethics and governance of research involving humans, and the responsible conduct of research (research integrity). He has published dozens of articles on diverse topics, including stem cell tourism, biobanking and informed consent, commercialization of stem cell research, hype and public trust, and the responsible conduct of research in scientific publishing. Zubin continues to serve or has been a member of several governmental and non-governmental committees and journal editorial boards. Competing interests: Zubin is a longtime collaborator with Bryn Williams-Jones, with whom he also co-supervises the PhD of Elise Smith.


marianaMariana Nunez, MA, Ethics counsellor, Université de Montréal. Mariana Nunez, has a Bachelors in biology, a diploma in education and a Masters in Bioethics from the University of Montreal. She worked as a research assistant on various health science projects at the University of Montreal and McGill University. Currently, she is a research coordinator at the CHUM. She also works as an ethics counsellor at the University of Montreal, where she is responsible for annual continuing ethics review of research projects. Since 2011, Mariana has been a substitute member specializing in ethics for the Research Ethics Board of the CÉRT du Centre Dollard-Cormier – Institut universitaire sur les dépendances, and since June 2013, on the REB of the Clinical Research Institute of Montreal (IRCM). She is deeply engaged in bioethics teaching and since 2007 has worked as a professor teaching the course "Bieothics and Society" for the BSc in biotechnology at La Cité college in Ottawa. Competing interests: none declared


JPoupartJean Poupart, BCom, LLB, DDN, MA, has practiced for twenty years as a notary in Quebec. A return to studies in the Bioethics Program at the University of Montreal was the catalyst that led him to choose to live full-time his passion for this area of practice. Member and president of a private research ethics board (REB) for 18 years, coordinator of an REB responsible for 10 addiction rehabilitation centres of the Quebec health network and a member of two REBs at the University of Montreal, Jean had the opportunity to familiarize himself with a diversity of contexts. He completed in 2015 a Master’s degree in bioethics about the ethical acceptability of financial incentives offered to healthy participants in clinical studies. He is particularly interested in the scope of ethical principles and standards of various regulatory texts that guide the thinking of REB members. Competing interests: none declared


Dr. Rudnick photoAbraham (Rami) Rudnick, MD, Mpsych, PhD, is a certified psychiatrist and a PhD-trained philosopher. He is a Professor in the Department of Psychiatry and Behavioural Neurosciences and an Associate Member in the Department of Philosophy at McMaster University. He is the Psychiatrist-in-Chief as well as a staff psychiatrist at St Joseph’s Healthcare Hamilton, Ontario, Canada. He is an Adjunct Professor at Royal Roads University in Victoria, British Columbia, Canada, and an Adjunct Research Professor at the Arthur Labatt Family School of Nursing in the Faculty of Health Sciences and a member of the Rotman Institute of Philosophy, both at Western University in London, Ontario, Canada. He is a Canadian Certified Physician Executive and a Certified Psychiatric Rehabilitation Practitioner. He is a Senior Editor of the Canadian Journal of Community Mental Health. He is the founder of the Canadian Unit of the International Network of a UNESCO Chair in Bioethics, and the recipient of a national pioneer award in recovery research granted by Psychosocial Rehabilitation (PSR) /Readaptation Psychosociale (RPS) Canada. Competing interests: none declared

Production Team

Linguistic Correction

SamiaSamia Cherfaoui, BScMA, has a Bachelors degree in pharmaceutical sciences (2012), a new program of the Faculty of Pharmacy at the Université de Montréal, and a master in Bioethics (2014). Her masters research focused on the inadequacy of the consent process regarding the expansion of personalized medicine and the introduction of  new genetic technologies in the clinic. She recently began PhD-level studies in a microprogram called « Analyse et évaluation des services, organisation et système de santé (AnESOSS)» to supplement her training. She was an intern in the Department of Pharmacogenomics at the Institute of Cardiology of Montreal as part of a project on the pharmacogenomics of warfarin. Also, she is currently a tutor in French at Collège Ahuntsic. Competing Interests: none declared


Sylvie LesperanceSylvie Lespérance, MD, received her medical degree from the Université de Montréal in 1984 and completed a DESS in Bioethics in the School of Public Health at the same institution in 2015. She has practiced family medicine for 30 years at the Hôpital du Sacré-Cœur de Montréal (HSCM). Sylvie is also medical examiner for complaints in several health institutions, a function that combines clinical expertise and communication skills in order to maintain the credibility of the complaints process with a view to continuously improving the quality of care and services to users. Member of the HSCM Clinical Ethics Committee for several years, she assumed responsibility for the committee in April 2015. It is a result of her interest in bioethics and love for her mother tongue that she contributes as corrector of French texts. Competing interests : none declared


Page Setting

HazarHazar Haidar, MSc, has a Masters in genetics and health and is currently a doctoral student in Bioethics at the University of Montreal. Her thesis project focuses on the ethical, social and legal issues raised by the introduction of Non-Invasive Prenatal Tests (NIPT) in two different cultural contexts: Lebanon and Quebec. Hazar is a research assistant for the project “PErsonalized Genomics for prenatal Aneuploidy Screening USing maternal blood” (PEGASUS) and works on various issues raised by the introduction of NIPT. This project has as an objective to provide information about the social and legal acceptability of NIPT that will be relevant for policy decisions on the inclusion of the test in the Canadian health care system. Competing interests: none declared


Bryn Williams-Jones, PhDis Associate Professor and Director in the Bioethics Program, Department of Social and Preventive Medicine, School of Public Health (ESPUM) at the University of Montreal. An interdisciplinary scholar trained in Bioethics, Bryn is interested in the socio-ethical and policy implications of health innovations in diverse contexts. His research also examines the conflicts that arise in academic research and professional practice with a view to developing ethical tools to manage these conflicts when they cannot be avoided. Bryn heads the Research Ethics and Integrity Group (www.researchethics-integrity.ca). Competing interests: Bryn currently supervises (or has supervised in the past) many of the members of the editorial board (Jean-Christophe Bélisle Pipon, Maude Laliberté, Charles Marsan, Elise Smith, Mariana Nunez) and is a close collaborator with Zubin Master.

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Executive Board (contact@bioethiqueonline.ca)

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Authors should submit their manuscripts by email (as attachments) to the appropriate section editor. The section editor will then reply with a confirmation of receipt and an approximate timeline for primary consideration and editorial review.

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Publisher BioéthiqueOnline | ISSN 1923-2799 (digital) | Formerly  | Frequency 1 issue per year | Publication period 2012- | Available in Érudit 2015- | Language(s) French, English | Format Digital | Access policy Open Access | Discipline(s) Philosophy, Health Sciences, Humanities and Social Sciences

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